- VIDEOS |
- IF I WERE TOM |
- REEF KNOT KITS |
- BC SUPPORT GROUPS |
- CANADIAN SUPPORT GROUPS |
- PEER COUNSELLING |
- RESOURCE PARTNERS |
Prostate Cancer BC is proud to present videos from our many wonderful speakers who have so kindly offered their time and expertise to our Support Groups. We are steadily building up our library of presentations and have several clear and informative videos for you to review at your convenience, or share at your support group meetings, with several more being added each month. Check back frequently for new videos or subscribe to our YouTube channel, @prostatecancerbc, to receive updates.
Tom is dealing with prostate cancer.
The waiting. The treatments. The side effects.
What would you do in his place?
If I Were Tom is an invaluable resource for men attempting to navigate their prostate cancer journey - from being diagnosed and navigating treatments and side effects to living long-term with prostate cancer and lowering your chances of your cancer coming back.
It is free and easy to navigate. Each topic includes several videos from prostate cancer survivors and experts in the field of prostate cancer providing you with research-based and clear advice.
If I Were Tom is a project of Prostate Cancer Foundation BC , developed in research partnership by the Men's Health Research team at the University of British Columbia and the Canadian Institutes of Health Research.
Prostate Cancer BC has been providing Reef Knot Kits free of charge to newly diagnosed patients in BC for nearly 20 years.
These kits are comprised of the latest books, pamphlets and information regarding prostate cancer. We provide them to urologists, general physicians, support groups, and newly diagnosed patients to help the patient make an informed decision about their treatment.
There are many facets to prostate cancer and many treatment options. Only when you know what is best for you and your family can you make an informed decision.
Each of our new and improved Reef Knot Kits will include a copy of two excellent books: ‘Prostate Cancer: Understand the Disease and Its Treatment,’ a comprehensive, yet simple guide to prostate cancer diagnosis, treatment, and side effects, and ‘Prostate Cancer Strikes: Navigating the Storm,’ a personal account of the author’s prostate cancer journey, including all of the intimate details he wished he’d known from the beginning of his diagnosis.
In your Reef Knot Kit, you will also receive a prostate cancer passport to help you keep track of your appointments, treatment options, and details from your medical care team, a nutrition guide and exercise pamphlet designed for prostate cancer patients, and more information on support services and other helpful resources that are accessible to you at this time.
Our support groups bring together people who are going through, or have already gone through, the experience of being diagnosed with prostate cancer, navigating the many treatment options, and managing the different chronic side effects that may accompany treatment. They provide an opportunity for individuals, and their support people or partners, to share their personal experiences and thoughts and to receive emotional support from others in the group. Many groups also offer educational opportunities by inviting guest speakers, including healthcare professionals, counsellors, researchers, and others, to speak on topics related to prostate cancer treatment, research, and coping.
Being part of a support group offers many benefits to the individuals who partake. For some, support groups fill the gap between medical care and the need for expanded emotional support. For others, support groups are a safe place where they can get practical feedback about their treatment options. But most importantly, support groups are a powerful way to learn through collective experience and gain a sense of empowerment over living with prostate cancer.
The following website includes more information on the many support groups throughout British Columbia who are supported by Prostate Cancer Foundation BC. The calendar on the website is updated often and allows you to see at a glance when meetings will be taking place near you.
ProstateCancerSupport.ca is a website proudly created by Prostate Cancer BC to give a home to the many prostate cancer support groups across Canada. Here you will find more information about why support groups are such an invaluable resource for newly diagnosed men, men who have been living with prostate cancer for months, years, or decades, as well as their loved ones.
You will also find a listing of all the prostate cancer support groups across Canada, their contact information, and a calendar with links to open meetings.
If you're not sure that support groups are right for you and are perhaps not ready to have a personal discussion amongst a group, Prostate Cancer Foundation BC is proud to host a volunteer peer counselling program that may help. This program matches men who are newly diagnosed with prostate cancer, or looking for someone to chat with privately about treatment and diagnosis, with one of our support group leaders or volunteer peer counsellors.
To be contacted by a peer counsellor, please fill out this short form:
Prostate Cancer Foundation BC is proud to work closely with the following organizations who provide further resources to men with prostate cancer and their families.
Prostate Cancer Supportive Care Program
The PCSC Program is a comprehensive survivorship program developed in 2013 at the Vancouver Prostate Centre for men with prostate cancer, their partners, and family from the time of initial diagnosis onwards. Men can self-refer to this program or be referred by their doctor (a doctor’s referral is required for the Sexual Health Service).
The PCSC Program is a clinical, educational, and research-based approach to care, addressing the challenges of decision-making and coping along the entire disease trajectory to serve both the patient and their partner’s physical and psychological needs.
The PCSC Program currently includes seven modules which men can take part in with more modules in development. These modules include group educational sessions and clinical services in the following areas:
- Primary Treatment Decision-Making
- Sexual Rehabilitation
- Lifestyle Management (Nutrition and Exercise)
- Androgen Deprivation Therapy
- Pelvic Floor Physiotherapy
- Clinical Counselling
- Advanced Disease Management
Life on ADT
Androgen Deprivation Therapy (ADT) is an effective treatment for prostate cancer, but has many side effects.
The Androgen Deprivation Therapy Educational Program is a free 1.5-hour session during which patients and loved ones will:
- Learn about side effects of ADT
- Learn how to manage side effects
- Complete goal setting exercises to teach you how to manage ADT side effects
The program is designed for both patients and their partners or loved ones. Patients who are not partnered are encouraged to invite a family member or close friend to attend the session with them.
Canadian participants receive a free copy of the book Androgen Deprivation Therapy: An Essential Guide for Prostate Cancer Patients and Their Loved Ones.
The SIRvivor BC Prostate Cancer Community Exercise Program runs for 12-weeks, consisting of 2 one-hour sessions each week. The program is tailored to men living with prostate cancer and focuses largely on strength development through resistance-based exercise. The program is delivered by exercise trainers certified through the BC Recreation and Parks Association. This program is also being evaluated under a research study, which seeks to gather feedback from the program participants on their experience in the SIRvivor BC program. They hope to use this feedback to help them improve and grow the program over the course of the next few years.
All men who are 19 years of age or older and have had a prostate cancer diagnosis are eligible for the SIRvivor BC program. All participants will also be asked to complete a simple pre-exercise screening with a certified exercise physiologist.
TrueNTH (“True North”) Peer Navigation is a free navigation program that puts you in touch with someone who has experienced prostate cancer and is trained to support you through your journey.
- Talk to someone about their real experiences – more than just online browsing and statistics.
- Feel comfortable discussing symptoms and side effects with someone who knows what it’s like.
- Take the time you need to ask detailed questions and discuss your options.
- Find the support you need to overcome barriers to your care and recovery.
For more information, please see their website.